Sunday, January 19, 2020

January 19, 2020 - Weekend Spotlight - Steve Gleason, Congressional Gold Medalist

Greetings from Bowling Green, KY

My computer battery is low, so there is a good chance Sunday gets two posts instead of a Saturday evening post. One thing about preparing for travel in 2020, is that you have to make sure everything is charged up and ready for the road, including yourself.

Here are some phrases or quotes that you have seen or heard before, especially if you are a fan of a particular team.
  • No White Flags
  • Awesome Ain't Easy
  • #Never Punt
  • Defend NOLA
  • Through adversity we find our heroes
  • We all have a timeline. Most of us don't live like we have a timeline.
  • Rebirth
  • The moon. The moon.
All of these words or phrases have come from one man, Steve Gleason. Yes, Steve will document almost every single full moon that he and his family witness on social media with those words. Steve does it with the assistance of his eyes though. He uses eye tracking technology  to communicate with others via text, social media, and email. The software is so amazing that it uses a patient's voice that was preserved in the case of ALS taking away that ever so important bodily function. Microsoft has played a huge role in developing these technologies.

In  January 2011, Steve Gleason was diagnosed with ALS (known to some as Lou Gehrig's Disease). About 4 1/2 years before that Steve made one of the most important plays ever in the history of the New Orleans Saints. He blocked a punt on the Atlanta Falcon's first drive in the first game back in the Superdome after Hurricane Katrina. That play signified the rebirth of NOLA after the terrible destruction that the storm had rendered the previous year. During the summer of 2012, a statue was erected with the words "Rebirth" etched on it. That statue honors that play and the impact it has had on the city's rebuilding.

When he was diagnosed on that day back in 2011, who would have ever thought we would see him become the first NFL player awarded the Congressional Gold Medal. A man who only played six or seven years of professional ball bestowed with one of the highest honors a citizen can receive. It wasn't due to that amazing block that he had in 2007, or the reckless way he played on the field every time he stepped on it. Many coaches probably wished all their players were motivated as much as he was when he played. I was moved by the emotional speech Drew Brees gave as part of the ceremony. I recommend that you watch it.

Steve Gleason has impacted the world in ways many of us could only dream of at times. When he was diagnosed, he made a promise that he would fight and would live each day like he had a timeline. Six weeks after he was diagnosed with ALS, he and his wife found out that they were pregnant with the young man who is his son Rivers. It's amazing to see how involved he is in the life of the young boy. You should follow Steve on social media, and you will laugh or smile a few more times every week.

Why was Steve given the Congressional Medal of Honor this past week? You could probably ask the many ALS patients who have gotten the chance to go on bucket list adventures that they probably thought at one time were impossible. Or ask the thousands who have access to technology that helps them live as close to a normal life as possible. His foundation and his voice have been a huge advocate for those that suffer from ALS and other neuromuscular disorders.  I refer you to teamgleason.org for more information. Please, please take a minute or two to check it out.


I don't know many of us that would have or could have reacted the way he did nine years ago. When you are faced with adversity, and some harsh realities, how would you react? How would you decide to live?

Here is a little recap of the award ceremony from last week - Congressional Gold Medal Ceremony

The top picture - The Rebirth Statue
The lower picture - Myself with Steve at the Crescent City Classic in 2016 (Runners were able to raise money for various non-profits, and I was part of a large group that ran for Team Gleason). 



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